Watch this enlightening video where Dr. Fernando F. Corrales-Medina reviews the problems associated with underdiagnosis of von Willebrand disease (VWD), the importance of patient and physician education to increase awareness of VWD, the availability of a bleeding questionnaire at vwdtest.com/us to help patients assess their bleeding, and the central role of diagnosis in developing an appropriate treatment plan to maintain hemostatic integrity.
Although VWD is the most common congenital bleeding disorder, approximately 90% of people with the condition are underdiagnosed. Lack of awareness in both the patient and medical communities, and the lack of daily symptoms in patients, contribute to this problem. The most common symptoms of VWD include frequent and severe nosebleeds, excessive bruising, or heavy menstrual bleeding. When those with VWD are not diagnosed correctly, they remain susceptible to severe and unusual bleeding when exposed to surgeries or other medical and dental procedures, as well as to long-term negative impacts on quality of life. Increased education and improved awareness of the symptoms of VWD are key.
Prophylaxis, or regular, proactive factor treatment to help reduce the frequency of bleeds by preventing them before they happen, can help people living with VWD manage their illness and stay ahead of symptoms.
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