Watch this informative video where Dr. Michelle Sholzberg reviews the prevalence of heavy menstrual bleeding in women with von Willebrand disease (VWD), associated risks, and treatment options to manage menstrual flow as well as the underlying factor deficiency.
Heavy menstrual bleeding is exceedingly common in women with VWD, with some estimates placing it as high as in 100% of women with the condition. VWD in women makes them highly susceptible to heavy menstrual bleeding and presents significant problems for patients beyond the management of monthly periods, including iron deficiency and iron deficiency anemia, risk of blood transfusion and/or hospital admission, post-partum hemorrhage, and hysterectomy. Because women bleed naturally every month during their reproductive years, detecting VWD-related bleeding can be challenging. Reducing the stigma associated with talking about vaginal blood loss, and testing women who have experienced heavy menstrual bleeding from the onset of menstruation are recommended, along with increased research and education.
Prophylaxis, or regular, proactive factor treatment to help reduce the frequency of bleeds by preventing them before they happen, can help people living with VWD manage their illness and stay ahead of symptoms.