Underdiagnosis in Von Willebrand Disease

Watch this enlightening video where Dr. Fernando F. Corrales-Medina reviews the problems associated with underdiagnosis of von Willebrand disease (VWD), the importance of patient and physician education to increase awareness of VWD, the availability of a bleeding questionnaire at vwdtest.com/us to help patients assess their bleeding, and the central role of diagnosis in developing an appropriate treatment plan to maintain hemostatic integrity.

Although VWD is the most common congenital bleeding disorder, approximately 90% of people with the condition are underdiagnosed. Lack of awareness in both the patient and medical communities, and the lack of daily symptoms in patients, contribute to this problem. The most common symptoms of VWD include frequent and severe nosebleeds, excessive bruising, or heavy menstrual bleeding. When those with VWD are not diagnosed correctly, they remain susceptible to severe and unusual bleeding when exposed to surgeries or other medical and dental procedures, as well as to long-term negative impacts on quality of life. Increased education and improved awareness of the symptoms of VWD are key.

VWD and Prophylaxis

Prophylaxis, or regular, proactive factor treatment to help reduce the frequency of bleeds by preventing them before they happen, can help people living with VWD manage their illness and stay ahead of symptoms.

Find out if prophylactic treatment is right for your VWD

Related Resources

Von Willebrand Disease: Fast Fact Video Series (Educational Video)
Get a quick overview of von Willebrand disease (VWD) — what it is, its prevalence, cause, symptoms, types, and impact — in our series of 4 short videos on this bleeding disorder.
Am I the Only One? The Genetics of Von Willebrand Disease (On-Demand Video)
This on-demand webinar presented by Octapharma resident hematologist Claudio Sandoval covers the way genetic inheritance of VWD works, its impact on the family and family planning, as well as an overview of causes, symptoms, and diagnosis for the disease.
Diagnostic Challenges of Hemophilia A, VWD, & Iron Deficiency: Hidden Figures (On-Demand Video)
This on-demand webinar presented by Octapharma Clinical Nurse Educator Amber Federizo, DNP, covers the challenges to accurate diagnoses and limitations of laboratory testing, as well as the importance of early screening, personal and family bleeding history, physical examination, and attention to symptoms as critical diagnostic aids.

Join Now to Access Member-Only Resources

Already a member? Sign-in here.

Explore Other Education Resources

Explore Member-Only Resources

Home Inicio > Learn Obtener información > >

This content is not intended to be a substitute for professional medical or nursing advice, counseling, diagnosis or treatment. Please consult with your local Hemophilia Treatment Center physician or other health care provider if you have any questions related to management of bleeding disorders.

Este contenido no tiene como objetivo reemplazar el consejo, asesoramiento, diagnóstico o tratamiento de un médico o enfermero profesional. Consulte con el médico de su Centro de Tratamiento para la Hemofilia local u otro proveedor de atención médica si tiene preguntas relacionadas con el manejo de los trastornos hemorrágicos.

VWD and Prophylaxis

Related Resources

On-Demand WebinarSeminario web a demanda

Presented by Presentador