Jeff was diagnosed with severe hemophilia A shortly after birth, but he hasn't let it slow him down. “I don't have time to bleed!” That's how Jeff describes his busy and sometimes hectic lifestyle. Born and raised in Minnesota, Jeff has always loved being outdoors, something he still enjoys today with his family. “I like to be outside, spending time with my family when I'm not working. In the winter, we go sledding. In summertime, we go to the park and fish. I need a factor therapy that keeps me on the go 365 days a year.”
Jeff started prophylactic therapy while still in school. He tried a few different factor therapies but found that they did not meet his needs. “I was managing well for a while, but I was increasingly having breakthrough bleeds, despite being on prophy. Managing those bleeds really got in my way – every month I “lost” a couple of days. That was time I didn't have to spare. I needed something different.”
Working closely with his HTC team, Jeff was encouraged to try NUWIQ for his bleed prevention and management. He is on a 3 day–per–week prophylactic regimen and finds that it works well for him. “Since I started NUWIQ prophy, I haven't had a single nosebleed – I've had no issue whatsoever.” Jeff reports that the control and convenience he gets with NUWIQ really supports his active lifestyle year–round. “NUWIQ really works well with my lifestyle. It's very convenient, and it's been keeping me bleed–free. It's the best product I have ever used. In fact, since switching to NUWIQ I almost forget what it's like to deal with bleeds. That's been my biggest takeaway. I don't have time to be slowed down a couple of days a month because of a break-through bleed.” Jeff is excited about all the advancements in bleeding disorder treatments, particularly because he has a daughter who also has hemophilia, although her condition is mild. “I want to ensure that she has the best care possible as well.”
Jeff is married with four children — three girls and one boy. “They keep me on my toes!” He also manages a busy grocery store and is very active in the bleeding disorders community. He is a big believer in preventative therapy, because he is always on the go and wants to keep it that way. “NUWIQ lets me live a full life and do all the things I want to do. I am living with hemophilia A and living well.”
Jeff also reports that in addition to his confidence in NUWIQ, he has been very pleased with Octapharma's Co–Pay Assistance Program. “Compared to my experience with other companies, it's much more user friendly. That's a make or break for somebody like me with a large family. To have a manufacturer that's there when I need them – I think that's huge.”
This material represents individual patient and/or caregiver experience living with a bleeding disorder.
This content is not intended to be a substitute for professional medical advice, diagnosis or treatment. Please consult with your local Hemophilia Treatment Center physician or other health care provider if you have any questions related to management of bleeding disorders.